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National Suicide Prevention Week

National Suicide Prevention Week

Suicidal thoughts, much like mental health conditions, can affect anyone regardless of age, gender or background. In fact, suicide is often the result of an untreated mental health condition. Suicidal thoughts, although common, should not be considered normal and often indicate more serious issues.

Every year thousands of individuals die by suicide, leaving behind their friends and family members to navigate the tragedy of loss. In many cases, friends and families affected by a suicide loss (often called “suicide loss survivors”) are left in the dark. Too often the feelings of shame and stigma prevent them from talking openly.

September is National Suicide Prevention Awareness Month—a time to share resources and stories in an effort to shed light on this highly taboo and stigmatized topic. We use this month to reach out to those affected by suicide, raise awareness and connect individuals with suicidal ideation to treatment services. It is also important to ensure that individuals, friends and families have access to the resources they need to discuss suicide prevention.

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Specialty Pharmacy

Walgreens Alliance RX

Time to reorder and this time around the Specialty Pharmacy called me, up until now, I had to call them and place the order, which well that sucks if you have brain fog going on and you space out and forget. Of course I wasn’t home to receive the call, so I called them back and I got to speak to Brian @ Walgreen’s Specialty Pharmacy and let me tell you this, Brian is not only great at his job, but he is funny on top of that. He basically did the whole phone call like a game show or infomercial  and it was a riot. And at the very end he read the disclaimer of about 45 seconds, all in one breath and at about 1 and half times the normal speed. And right before he was finished, he added the obligatory, “but wait there’s more…” Thanks Brian for that, I needed a laugh today.

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Road Trip

Welcome to Florida

I recently took a road trip to Florida (I reside in Northern Virginia). The first day I drove to the Georgia/Florida line and I was very stiff and sore that night. Let me tell you that 9 hours behind the wheel even with hourly stops is just too much for someone with RA and Fibro. A good night’s rest, some meds and I was off in the morning to drive the last 5 hours to my mom’s house.

I had a great time visiting Mom and my step-dad, and their little dog, got to see some of Florida before it was time to head back and make the long painful drive again.

The very last day was just a few hours behind the wheel, but it was the most painful yet. I was exhausted and my knees, hips, hands, elbows and shoulders along with my neck were in so much pain.

The worst part was the last day, I started to notice that I had an upper respiratory thing going on and in a world of COVID, that is not something you take lightly. I had a doctor’s appointment and it was “:stop the Enbrel and take these antibiotics and steroids for a week.  I appreciate the thoroughness of this, but I so miss my Enbrel. It is actually working for me and now I’m going to be so sore again until I can get it back into my system.

Here are a few pics from my trip.

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Nervous About This Weeks Injection

Enbrel Injections

I’m so nervous about this weeks injections. I have felt like crap all week and started to feel decent today and I have to take this weeks injection tonight. I’m thinking, but hoping I’m wrong, that the injections are what is making me feel so rough lately. I guess time will tell.

 

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What a Year This Week Has Been

Enbrel Injections
What a year this week has beenSo let me state this couldn’t be any more of a truer statement this week. I have had every intention of going onsite to work this week, but so far I have racked up telework hours. I’m sure it won’t be long until they tell me to come in or I will lose my job.
 
It seems like the Enbrel injections are working for the RA side of the house, but either the weather, the Enbrel or something else is causing a massive flare on the Fibromyalgia side of the house and then it looks like my Diverticulitis might jealous that the RA and the Fibro are getting all the attention. I can’t say for a fact that it is the Diverticulitis, it could be a side effect from the medications, just not sure yet. Everything I eat makes me super nauseated and upsets my stomach.
But it has been a very trying week. I’m just so thankful that I can currently telework, but I have to be on-site next week, no excuses.
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Men’s Health Month

Men’s Health Month

The purpose of Men’s Health Month is to heighten the awareness of preventable health problems and encourage early detection and treatment of disease among men and boys. This month gives health care providers, public policymakers, the media, and individuals an opportunity to encourage men and boys to seek regular medical advice and early treatment for disease and injury. The response has been overwhelming with thousands of awareness activities in the USA and around the globe.

Links
http://www.menshealthmonth.org/

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World MS Day

World MS Day unites individuals and organizations from around the world to raise awareness and move us closer to a world free of MS.
In 2009, the Multiple Sclerosis International Federation (MSIF) and its members initiated the first World MS Day. Together we have reached hundreds of thousands of people around the world, with a campaign focusing on a different theme each year.
MSIF provides a toolkit of free resources to help everyone to take part in World MS Day. Anyone can use these tools, or make their own, to create positive change in the lives of more than 2.3 million people around the world.
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Package From Enbrel

Enbrel Injections

Contents of the PackageI received a package from Enbrel today, it contained a nice set of instructions, FAQs and how-to’s and a nice little insulated travel pouch to put my injectors in. Thank you very much Enbrel

What I found missing were any instructions on how to use the pouch effectively and it would have been nice if they put a little reusable ice block with it. So my question is do I put ice inside the insulated bag or store the closed bag inside an ice chest? I think that the concept is to put the carrying pouch inside the white plastic bag and then put that in an ice chest.

I really appreciate their thinking on this, but it just seems to fall a little short, kind of like the sharps container and alcohol wipes.

The wipes really get me, I know they are cheap and I could easily pick them up myself (which I did), but Enbrel being a biologic, one would think that they would send you wipes and preach about using them in an effort to help keep infections at the injection site down.

 

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No Joke

Enbrel Injections

I’m so reluctant to post this, but maybe someone out there can use this. RA and Fibro are no joke. I never imagined myself as a 50yo and need help walking at times, some days (like today) barely being able to get out of bed (it’s 3p.m. and I’m on my third nap).The physical pain and mental anguish can at times be too much, which turns into depression. The self doubt from feeling so tired, so exhausted, so useless also turns into depression. This shit is no joke.

I was once a very active, physically fit US Marine and today I can’t get out of bed. This mornings strip to the farmers market has done me in.

I’m not looking for sympathy, that’s not me, but this blog is a way for me share with others.

I will keep fighting!!!!! If you are dealing with something like this, you CAN keep fighting too, you must!!!!

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Fibromyalgia Awareness Day

Fibromyalgia is an immobilizing, difficult to manage and not widely known disease which affects many men and women worldwide.

It’s a disease which is about seven times as likely to affect women than men, and although it usually is seen in people between the ages of 30 and 50 it can appear in sufferers of any age, whether elderly or child.

Fibromyalgia is a difficult disease to diagnose; there isn’t a specific set of testing which is able to find and diagnose it, and the symptoms that sufferers experience are often attributed to other diseases before fibromyalgia is presented as the culprit.

Fibromyalgia, which affects more than 12 million Americans, is a musculoskeletal syndrome that may cause some or all of the following: widespread pain, tender points, incapacitating fatigue, anxiety, depression, migraines/chronic headaches, irritable bowel syndrome, irritable bladder, insomnia, hypersensitivity to cold/hot, swelling, fibro fog (inability to concentrate/focus), difficulty remembering, numbness, stiffness, decreased energy, noise, light and odor sensitivity, and skin sensitivity.

Symptoms may come and go, lasting a few minutes, an hour, a day, a week, a month or a year.

Resources:
National Fibromyalgia Association
Fibromyalgia News Today
Fibro Center

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